Book: My Every Breath - A memoir of love, loss and hope by Anna Maynardcategories: Book, Respiratory, Cystic Fibrosis, Love, Loss, Hope, Transplant, Murder, Memoir
Anna Maynardabout this book: I am a 57 year old living with Cystic Fibrosis. I was born at a time when CFers were lucky to live past the age of 14 years. My Sister past away at the age of 14 years of CF. No one new much about the disease and in reality we were the ginny pigs and they learned with us. Many still haven't heard or know very little about CF even if it's #2 killer in kids. Cancer is #1.
I was one that would do most trial meds to see if they worked. I also tried to hide most of my life that I was sick. I have beat all odds and not sure why, maybe it's my stubbornness and the will to live.
I am married and it will be 39 years in August. I have 3 Children which are now adults and married. I have 4 beautiful grandchildren and one on the way which I adore.
At the age of 42 my lungs were declining and were at 25% capacity. They put me on a transplant list and waited 1yr 1/2. March 1,2004, I received a Double Lung Transplant. I never knew what breathing without gasping and coughing was like. I never knew what it was like to not feel my heart pounding. I will be forever thankful to the family that donated my lungs. They truly gave me the gift of life! I was now able to be here to raise my children. It took me a long time to get over the pain I had that one had to loose a life so I could live.
We never and will never take life for granted as you never know.
I found myself in a dark place 7 years later when my Mother was senselessly Murdered. My Mother is one of the reasons I am still hear today. She showed me to never give up no matter how hard it is. She was one I can always count on. She was my rock. Now I had to learn to live without her. This was and still is very hard today.
Many have told me most of my life that I should write a book. I only really thought about it when I felt I couldn't get out of this dark hole.
I wrote this memoir with Karen Emilson to give hope and to give inspiration to families living and dealing with Cystic Fibrosis or any chronic disease.
I am so thankful to still be alive as I love life, even if mine was hard and heavy at times. I wished I had inspiration and hope when I was young and even now to move forward. I also wrote this memoir for self healing as at times it would have been easier to just give up but that option was not in my nature. I love life!
I will fight for life till the end.
Let's talk about Covid for a moment.
This isolation really brought the world to live like a CF/transplanted person. We have lived this alone and no one ever really knew the fear we had every day to catch a virus/ cold as it could send us into rejection. Always had to be aware of anyone who was sick where we were going or coming over and make that decision to miss out weather it was Christmas or a birthday or any kind of get together. I find no one ever understood even family, the gravity of it and thought I was over protective. Normally a cold would last a week for someone healthy but for us it would take weeks and antibiotics and sometimes hospitalization and the fear of rejection. This virus was even scarier for us immunosuppressed and diabetic. This Covid fear will be there till they find a cure and vaccine which I pray for every day. I really miss my grandchildren and my kids and ache to be with them. They understand very well what this could do to me and are very protective of me.
I also want to add, Please sign your donor card or be on the registry, talk to your family so you know their wishes. You never know as it may be you one day waiting for an organ to save your life.
preview: read a sample from this book
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