Book: What They Don't Tell You About Alzheimer's by Robert Bernsteincategories: Book, Memoir, Caregiving, Nursing, Old Age, Caregiver, Alzheimer's Care, Adult Mental Dysfunction, Family, Mother and Son, Alzheimer's
Robert Bernsteinabout this book: I started this book just a few days after I had buried my mother. She had struggled with Alzheimer's Disease for twelve, fifteen, maybe as long as twenty years. The actual start date is a mystery, because that's just the way it is with AD.
This was not an easy book to write. There were many embarrassing moments for my mother that I felt guilty about sharing publicly. For a long time I struggled with some of the things I wrote about.
But then the reviews and private emails started trickling in, like the two below.
"I am currently studying to be a MH Nurse and bought this book as part of my research for an exam. I wanted to get a different perspective to the rather cold clinical ones available. It is easy to forget when sitting in lectures the human cost of the disease and this book gives you just that. It is a highly brave and honest account of the reality of the disease and how it takes hold of not only the sufferer's life, but the whole family. I would recommend this book not only to those who just want to know more, but students and qualified professionals. It bought me close to tears several times and I know will stay with me for a long time. Thank you."
"I know here I'm supposed to discuss the quality of writing and information given in this book but for me it just wasn't about that. My grandfather suffered with dementia and died on my 9th birthday. trust me when I say its terrifying as a child seeing a man who cannot talk or communicate in any way. At that age dementia is a word that makes no sense. The one memory I clearly have of him is his stare. Even at seven or eight you can tell when someone is truly scared. He was.
What this book has provided for me is understanding and weirdly a little closure. I have read countless web pages on dementia and similar illnesses but they didn't really help me understand that stare full of fear my granddad had.
I am not ashamed to admit that I cried several times whilst reading this book but I also laughed. It reminded me of silly things my granddad did early in his illness."
If you have your own personal experiences with these types of illnesses, you will find true support and understanding in this book. Its a crazy roller coaster of emotions that is written in such an emotive and genuine way. Thank you."
My mother was a loving, caring person, who donated her time and energy to helping others in need. I like to believe she would be enormously pleased that, even from beyond the grave, her experiences battling AD have helped others cope.
What They Don't Tell You About Alzheimer's became a Top Ten Memoir on Amazon. I make it available as a free download as often as I can, or as often as Amazon will allow.
preview: read a sample from this book
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